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Friday, November 30, 2012

Day 4 at Mayo Clinic, Jacksonville FL

Upon arriving today we were informed the rheumatologist we were schedule more see has become ill and will not be available today. But Mayo Clinic personnel are doing there thing and trying to get us in to see another DR. So we are still hopeful we can get in and see a rheumatologist during this trip. This is one of then more major specialist we really feel we need to see to get a definitive answer on the Ankylosing Spondolytis diagnosis, as well as to determine if I should get back on the biologic medicines like Humira or Enbrel or not.

Currently waiting to see and orthopedist about the very inflamed and tensor Achilles Tendons I have and the pain in the arches and tops of my feet.

10:00 am - I definitely have tendinitis in both Achilles tendons. Though it is mild to moderate and should not normally be causing the level of pain I am experiencing. Getting ready for some more X-rays to make sure there is not an underlying bone issue. The Fibromyalgia is a good candidate for the cause of the amplification of the pain level I am feeling.

4:45 pm - we finished all appointments with all the various specialist I was assigned to see during this visit. The ultimate diagnosis is that I do not have a rheumatic condition like Ankylosing Spondolytis, which is wonderful news as thee diseases require taking very strong biologic medications and can cause very crippling changes to joints and bone structures. I was left a definitive diagnosis of Fibromyalgia and Central Sensitization Syndrome, which unfortunately has no cure at the present time.

So now I will need to focus on changing lifestyle to a more moderate constant level of activity, vs. the go as hard as you can as long as you can mentality I have had for most of my life. I have been fortunate enough to be accepted into the Mayo Clinic's Pain Rehabilitation Clinic program. It is a 3 week intense program that will help me reprogram my brain to better deal with the Central Sensitization Syndrome Symptoms, learn to determine and map out what a moderate constant level of activity for me is, and to rid myself of having to take narcotic pain medicine. This is something I am greatly looking forward to.

I feel so blessed to have been able to go through the Mayo Clinic process, thanks to the wonderful team I have at NovoLogic, an incredible mother-in-law who helped take care of our kids, and an amazing wife who helped pushed to get me there, and has been by my side through all the many doctors visits, my bad days, and the extra effort needed to kee our home running while I have been at a diminished capacity.


http://www.anaes.med.ed.ac.uk/univ/DrArtRoberts.pdf
http://www.ninds.nih.gov/disorders/central_pain/central_pain.htm






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